Please take a few minutes to watch this new video from the Batten Disease Support and Research Association (BDSRA), filmed at the organization's annual conference in Chicago in August 2010. It's a wonderful collection of perspectives from families and other individuals deeply affected by Batten disease. I'm featured on the video starting around the 4:30 minute mark. Thank you so much to our friends at BDSRA for creating this great tool in the fight against Batten disease and for allowing me to tell my story. Remember, you can help us fight this tragic disease by spreading the word and also by making a donation at http://www.taylorstale.com/get-involved. Thank you for your support!
The Batten Journey from On Scene Digital Printing on Vimeo.
Showing posts with label video. Show all posts
Showing posts with label video. Show all posts
Saturday, October 23, 2010
Thursday, September 24, 2009
Taylor's Tale Video
Check out the new Taylor's Tale video on YouTube! Learn more about Taylor's Tale, Batten disease and the fight for a cure. Get to know Taylor herself and find out what you can do to help support crucial research.
Many thanks to Jason Talley, Blue Bear Productions and everyone who participated - including Amy Tribble, Jill Fowler and Dr. David Pearce.
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