Give Me a Sail

Learning that someone you love has Batten disease is like being stabbed with a serrated knife. Watching Batten disease attack someone you love is like twisting that knife a little more deeply over days, weeks, months and years.

After almost four years of this, I know a lot more about Batten disease but still nothing more about the future than I did on day one. If there is one thing I do know, though, it's that I have to keep breathing.

Because tomorrow, the sun will rise...and who knows what the tide will bring? 

Give me a sail.